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Rett Syndrome Family Education Day

Empowering the Rett Syndrome Community! Announcing the first Annual Rett Syndrome Education and Research Day. Don't miss this rich opportunity to hear from and interact with leading physicians, researchers and service professionals working to understand the dynamics of this challenging disease and to improve the lives of patients and families living with Rett Syndrome!

This day-long event will provide state-of-the-science information for clinicians and researchers, and enrichment and connection for families, caregivers, educators, and therapists to empower the Rett Syndrome Community. Discussion topics and panels will range from family resources and clinical services to the latest in Rett Syndrome Research and Clinical Trials. 

Regisrtarion for the Reseach and Education Day is now open! 

https://redcap.urmc.rochester.edu/redcap/surveys/?s=HNP3KCNHTJ

Keynote speakers:

  • Michela Fagiolini, PhD, Researcher, Harvard Medical School and Boston Children’s Hospital
    • Ketamine and other new therapies for Rett Syndrome
    • Adaptiveswimming for individuals with Rett syndrome 
    • Music and the mind
  • Erika Augustine, MD, Neurologist, University of Rochester Department of Neurology
    • Introduction to Clinical trials
  • Alex Paciorkowski, MD, Neurologist, University of Rochester Department of Neurology
    • Latest in Rett Syndrome clinical trials
  • Sophie Molholm, PhD, Researcher, Albert Einstein College of Medicine 
    • Cognitive Evoked Potentials in Rett syndrome
  • Tufikameni Brima, PhD, Researcher, Cognitive Neurophysiology Lab
    • Auditory Evoked Potentials as biomarkers of Rett syndrome
  • Anne Luebke, PhD, Associate Professor of Biomedical Engineering 
    • Animal models of Rett Syndrome

Saturday, November 2 at 8:00am to 3:00pm

Sarah Flaum Atrium
415 Elmwood Ave Rochester, NY 14642

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Event Registration Required

This event requires registration.