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CATEGORIES:Lectures & Talks
DESCRIPTION:When conducting Exception from Informed Consent (EFIC) research
 \, it is vital to get input from the communities that may be impacted and t
 o ensure they are fully informed. Francis Guyette\, MD\, MPH\, from the Uni
 versity of Pittsburgh will share how to build a community consultation and 
 public disclosure plan for an EFIC study. \n\n1. Community consultation /pu
 blic disclosure is not one size fits all. Different communities require dif
 ferent strategies.\n2. Community consultation requires active listening and
  good survey tools.\n3. Electronic means of communication are necessary but
  not sufficient.\n4. All studies have vulnerable or underrepresented popula
 tions\, partner with them.\n5. Don’t pay for the same real estate twice. Ma
 ke your public disclosure efforts broad.\n\n###\n\nThis event\,  hosted by 
 the Trial Innovation Network\, is available to the University of Rochester 
 community via the UR Clinical and Translational Science Institute.
DTEND:20241016T170000Z
DTSTAMP:20260418T032434Z
DTSTART:20241016T160000Z
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SEQUENCE:0
SUMMARY:The EFIC Toolkit: How to build a community consultation and public 
 disclosure plan
UID:tag:localist.com\,2008:EventInstance_46790074314179
URL:https://events.rochester.edu/event/the-efic-toolkit-how-to-build-a-comm
 unity-consultation-and-public-disclosure-plan
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